Today, Health Data Research UK (HDRUK) announced that seven data hubs are to be set up across the UK to speed up research for new medicines and treatments. This initiative will support quicker diagnoses, with the potential to save lives. The hubs will focus on curated, disease-focused datasets, clinical trials, and real world evidence. Genomics England is a key partner in two of these hubs: DATA-CAN and Discover-NOW.
DATA-CAN: Using cutting-edge research and innovation to benefit UK patients
DATA-CAN – the Health Data Research UK Hub for Cancer – aims to transform how cancer data from across the UK can be used to improve patient care. The hub will work with patients to bring their clinical data together and use this data to help develop improved cancer treatments, give patients faster access to clinical trials, and understand how we can improve NHS cancer services. The hub, hosted by UCLPartners, will be supported by patients, charities, clinicians, academic and industry-based researchers and innovators, and will involve cancer hospitals across the country. Other partners include Queen’s University Belfast, University of Leeds and Leeds Teaching Hospitals, and IQVIA.
DATA-CAN Director Dr Charlie Davie of UCLPartners said:
Jacqui Gath, cancer survivor and patient advocate (ICPV/YHCRP), said:
More information about DATA-CAN can be found here.
Discover-NOW: Using real world data to improve understanding of many long-term conditions
Discover-NOW is the Health Data Research Hub for Real World Evidence. It is a unique partnership, led by Imperial College Health Partners, bringing together NHS organisations, globally recognised academic, technology, industry and charity partners as well as patients and the public to revolutionise the way health information is used to treat and prevent disease in the future.
Historically, health research has predominantly used data to look retrospectively. Through safe and secure curation of patient information, Discover-NOW will provide leading clinicians, researchers and scientists with access to de-identified linked patient information at scale in near to real time. This will enable them to look prospectively to identify new patterns in disease thus helping us to better manage many conditions and, in some cases, prevent them happening in the first place.
Discover-NOW Director Dr Axel Heitmueller said:
John Norton, Citizen Partner of Discover-NOW said:
Find out more about Discover-NOW here.
Genomics England’s Chief Commercial Officer Joanne Hackett said:
The Health Data Research Hubs are part of a four-year £37million investment from the Government Industrial Strategy Challenge Fund (ISCF), led by UK Research and Innovation, to create a UK-wide system for the safe and responsible use of health-related data on a large scale.